Support For People With Neurological Conditions
11th October 2020
£492,535million allocated to projects around the country.
A total of 17 projects which support people with neurological conditions are to benefit from the latest round of funding announced as part of a five-year action plan.
The investment of £492,535 is focussed on initiatives where partnership working is key. Many of the funded activities see NHS Boards, Health and Social Care Partnerships and Third Sector organisations joining forces to achieve better outcomes for people living with neurological conditions.
Funding recipients include Pain Association Scotland who will develop online courses to support the wellbeing of unpaid carers and the MS Society who will deliver online and telephone sessions to support the physical and emotional wellbeing of people living with MS in response to the pandemic.
‘Neurological care and support: framework for action - 2020 to 2025' aims to ensure people get access to personalised care and support regardless of their condition or where in Scotland they live.
Public Health Minister Joe FitzPatrick said:
"Around one million people in Scotland live with a neurological condition ranging from common conditions such as migraines to life-limiting illnesses such as Motor Neurone Disease.
"We recognise the scale, variety and context of neurological conditions and how distressing they can be for the person with the condition and their family and the framework for action aims to support those responsible for providing care and support to people affected.
"This latest round of funding will ensure this vital work not only continues but is strengthened despite the challenges faced during the pandemic."
PSPA provides information and support to people affected by Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD). CEO Andrew Symons said:
“Neurological Care and Support Framework Funding will allow us to map provision for PSP and CBD in Scotland, simultaneously highlighting the information and support that we can offer from PSPA.
“This will contribute to the aim of earlier diagnosis of these rare conditions and reduce the time spent by people in the wrong part of the system with the result they can benefit from the provisions of the Framework as soon as their disease is recognised."
NHS Forth Valley, Clackmannanshire / Stirling and Falkirk Health and Social Care Partnerships
Establish a virtual local neurological network and scope out the current local service provision for people with neurological conditions to co-produce a service signposting directory
NHS Ayrshire and Arran, Cerebral Palsy Scotland and ARC Scotland
Undertake an evidence review and collaborative planning work to prepare for the development of neurology specific principles of good transition across the lifespan
Scope services that provide care, support, information and advice to those affected by neurological conditions in Orkney to identify strengths, duplication, and gaps
NHS Greater Glasgow & Clyde
Establish a model of care with an Advanced Practitioner Physiotherapist in Neurology, focussing on evidencing the model in the Movement Disorders service, commencing with Parkinson's disease
Pain Association Scotland
Deliver five live online self management courses to help support the resilience and wellbeing of unpaid carers of people living with neurological conditions, within the context of the challenges they have faced during the COVID-19 lockdown
Develop a patient held record (PHR) for the patients of the NHS Lanarkshire Community Brain Injury Team
Develop a digital platform for Functional Neurological Disorder (FND)
NHS Greater Glasgow & Clyde
Establish and roll out an Epilepsy register in NHS Greater Glasgow and Clyde, NHS Tayside and NHS Lanarkshire
Conduct research into the provision of support for people living with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD)
Action for M.E (lead partner), #MEAction Scotland,
the ME Association
Scottish Huntington’s Association,
the Oxygen Works
Co-produce a local care framework that meets the changing needs of people living with M.E
Cerebral Palsy Scotland
Deliver a flexible support service combining virtual and in person multi-disciplinary therapy for people with Cerebral Palsy across Scotland, directly responding to issues occurring for people with Cerebral Palsy during COVID-19 lockdown
Through the MS Society’s ‘Wellbeing Hub’, deliver online and telephone sessions supporting the physical and emotional wellbeing of people living with MS in response to the COVID-19 pandemic
Parkinson’s UK and NHS Greater Glasgow & Clyde
Develop an integrated clinical and support service for People with
Parkinson’s to increase self management, increase welfare support services and reduce symptoms associated with Parkinson’s.
Enhance the support available for people living with Epilepsy across Aberdeen, Aberdeenshire, Moray and Fife, by harnessing the potential of digital and online technology
Develop a ‘Breakthrough Series Collaborative’ learning system, bringing together key neuroscience stakeholders from primary and secondary care, health and social care partnerships, allied health professionals, hospital management, third sector organisations and patients
Conduct a pilot study to investigate methods of enhancing knowledge and diagnosis of Functional Neurological Disorder within GP surgeries
Chest Heart & Stroke Scotland,
University of Edinburgh, POGO studio,
Edinburgh Headway Group
Develop an innovative digital presentation platform which will deliver comprehensive information to people living with neurological conditions and carers, to support shared decision making, consent and signposting